Search This Blog

Pookie Background

Wednesday, March 30, 2011

Special Friends and Special Celebrations

Early March, I made a very special trip down south to Ocala, FL with Rebekah. We were on a mission to celebrate a very special 2nd birthday party for another trisomy 18 child named Caleb.  I have been friends with his mom, Jeannette, for about two years. We met on facebook and I started a group called Trisomy 18 Mommies.  

Jeannette and Susan

Jeannette is my BFF - we've shared the 'Trisomy Journey' tears, fears, and joys together... but it has always been 'virtually'. We would even talk on the phone several times per week, but we had never met in person. 

I was so excited to finally meet her!

Rebekah and Caleb in their 'wedding' clothes.
Before the trip, Jeannette and I joked about dressing up Rebekah and Caleb in wedding garb and taking some photos. Very soon I will have a video slide show of this event!  Although it started out as a fun idea, in the back of our head there was always the reality that they will most likely never get to experience a real wedding. 
Rebekah and Caleb holding hands. :-)

The birthday party was amazing and I got to meet, not only Jeannette and Caleb, but several other special friends!!

What's really amazing is that Caleb's local news has been following his story from the beginning.  Here is a link to the most recent story about his birthday party and all of us who traveled to be there for the special occasion! Caleb Turns Two Amid Support For Edwards Syndrome Kids  

They have published several newspaper articles about Caleb and the journalist following Caleb's story recently posted a mini-documentary about him (below)!

If you'd like to keep up with Caleb's story, here is Jeannette's blog

No comments:

Post a Comment