Loving Life With Full Trisomy 18 - Edwards Syndrome - Helping Families with Prenatal and Postnatal Diagnosis of Trisomy 18, 13, and Related Chromosome Disorders - Dealing with Ethics, Genetics, and Related Medical and Health Issues
She's so expressive! So cute! Where is the trach? Did I miss something or is it hiding under the bib? Is she able to wear a cap? Just curious. :)
She can be capped during the day but mostly wears a PMV (Passy Muir valve) 24×7. So we keep a bib over it during the day. Keeps her ties dry as she drools a LOT! :-)
such a wonderful photo story - just love it to bits
I love it Susan!!! What a perfect sequence of pictures.barb
Thanks, Barb! The pictures were taken at Kaylen (T18) Horner's 12th birthday party! I'll eventually get around to publishingnsome of K too.