All of these comments and opinions were based on a false assumption... the assumption that Rebekah's 'quality of life' would be or is poor and that her existence negatively affects our family.
What is 'quality of life'?
- a term used to evaulate the general well-being of individuals (subjective well-being)
- what makes life worth living
- the extent to which people's 'happiness requirements' are met
Rebekah had an appt last week with her Developmental Pediatrician. His name is Dr. Desmond Kelly and he is such a compassionate and understanding doctor. We updated him on all the new things Rebekah has started doing in the last 6 months.
He had this to say about Rebekah:
- She seems to be genuinely happy.
- She explores her environment.
- She entertains herself.
- She has self-esteem and looks pleased when she accomplishes a task.
- Her highest area of development is her social skills.
- She recognizes and reacts positively to her family.
His response was agreement. "She obviously loves her family and brings you great joy. That is what it is all about."
How well stated! If only more doctors would look at 'quality of life' with the same view! And if you go back to the definitions of quality of life - I think Rebekah has mastered all the areas from her view: well-being, happiness, being, belonging, becoming, loving. She is, to us, all that God meant her to be. And I would say her quality of life is better than most people in the world. Even more importantly, she makes OUR quality of life better too.